tag:blogger.com,1999:blog-5931339813365183751.post7939564304349392676..comments2024-01-05T12:13:21.588-05:00Comments on Cowgirl Up!: If You Could Take Down Syndrome Away From Your Child's Life, Would You?Jenny Dawnhttp://www.blogger.com/profile/14606622799302380804noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-5931339813365183751.post-70040488920644332492013-03-08T21:49:01.163-05:002013-03-08T21:49:01.163-05:00Today actually I was talking to a girlfriend about...Today actually I was talking to a girlfriend about World Down Syndrome Day, My 3yr old daughter says " my brodder has Down Syndrome" ( she was 15 months when he was born) I smiled at her and said yes you are right. I then for the 1st time asked her what that meant to her... Her words Uhmm it means we go to all the dr's, and I hold his hand and kiss him, uhmm i know sign language for him, he gets needles ( it was RSV shot for her brother today..lol) and uhmm mommy he just my handsome brother and I love him. <3 Perfect answer!!! momma2tmkhttps://www.blogger.com/profile/08913384791328991040noreply@blogger.comtag:blogger.com,1999:blog-5931339813365183751.post-14297640095892345182013-03-06T21:34:01.073-05:002013-03-06T21:34:01.073-05:00Such a well-written post. I have written one like ...Such a well-written post. I have written one like it before and my feelings seem to be very similar to your own and to your contributors'. All parents would like to take away their child's heartache and suffering. Perhaps it is good that we cannot. But I wouldn't take Ds away.Leahhttps://www.blogger.com/profile/08985688905432556253noreply@blogger.comtag:blogger.com,1999:blog-5931339813365183751.post-77177303782563859132013-03-05T16:50:09.080-05:002013-03-05T16:50:09.080-05:00Thank you so much, Rachel!!! :)Thank you so much, Rachel!!! :)Jenny Dawnhttps://www.blogger.com/profile/14606622799302380804noreply@blogger.comtag:blogger.com,1999:blog-5931339813365183751.post-17093094194918540042013-03-05T16:49:39.704-05:002013-03-05T16:49:39.704-05:00Thank you, Anna!! Ellie's head bonk had me so ...Thank you, Anna!! Ellie's head bonk had me so worried as well- can't imagine how you got through it! Such a slippery slope.... I hope that the world continues to see the value in variances and does not constantly seek perfection. Thank you for your thoughts on this!Jenny Dawnhttps://www.blogger.com/profile/14606622799302380804noreply@blogger.comtag:blogger.com,1999:blog-5931339813365183751.post-39575360827963415942013-03-05T16:48:23.840-05:002013-03-05T16:48:23.840-05:00I think you are right--- I think Tommy knows somet...I think you are right--- I think Tommy knows something (all the appointments and surgeries)-- he actually probably knows more than we think he knows. :-) I think it is also probably part of his normal and along the way he will figure out there is a name for it as well. Thank you for your thoughtful comment!!Jenny Dawnhttps://www.blogger.com/profile/14606622799302380804noreply@blogger.comtag:blogger.com,1999:blog-5931339813365183751.post-86013647859607751132013-03-05T16:32:47.696-05:002013-03-05T16:32:47.696-05:00You are soooo good with words and your heart is pr...You are soooo good with words and your heart is pretty good too! Wordshurtorhealhttps://www.blogger.com/profile/12039330463065872512noreply@blogger.comtag:blogger.com,1999:blog-5931339813365183751.post-7863581559877042782013-03-05T09:46:17.145-05:002013-03-05T09:46:17.145-05:00Jen, another beautifully, thought-provoking post. ...Jen, another beautifully, thought-provoking post. I just realized that I never wrote my post or emailed you (got a little side-tracked by Ellie's head bonk). Anyway, I would want to take away thr health issues, but not the Ds. I think that extra chromosome is a part of who she is. It is hard to think along these lines. Let's say, the techonology was there to remove that extra chromosome. Who are we to play God? Where does it end? It is a slippery slope. Anna Theurerhttps://www.blogger.com/profile/06937391910402532608noreply@blogger.comtag:blogger.com,1999:blog-5931339813365183751.post-29646651301186794982013-03-04T21:20:34.471-05:002013-03-04T21:20:34.471-05:00We have five children. Our older two daughters kne...We have five children. Our older two daughters knew their sister had Down Syndrome shortly after we found out ~ when she was born. They were only two at the time. We have always been very open. Her younger sister (who is a five year old now) has always known. We never really 'told' her because it is a part of the natural flow and conversation of our household. We embrace her diagnosis ~ it is our normal. My one year old doesn't have a clue yet, but she will figure it out on her own as well...Anonymousnoreply@blogger.com